Bridging the gap between researchers and the Life science & Health research infrastructures

Showcasing EATRIS, BBMRI, and ELIXIR tools & resources

  • Date: Tuesday 13th - Wednesday 14th June 2023, lunch to lunch. 
  • LocationPaushuize, Kromme Nieuwegracht 49, Utrecht & online (hybrid meeting) 


The joint life-sciences research infrastructures (RIs, e.g., EATRIS, BBMRI and ELIXIR) develop and provide services for specific research communities helping to solve bottlenecks and push forward the frontiers of scientific disciplines. In practice we see that the user community is often unaware or insufficiently aware of the services available to them. On the other hand, RIs developing the tools and resources need to stay in touch with a broad range of potential users to get a clear picture of their actual needs.  

In the Netherlands, Health-RI aims to be a connector for the national research communities and institutes to get/be optimally aligned with the new developments in the European Research Infrastructures. This workshop is dedicated to showcase several resources developed in Research Infrastructures: context, get feedback on those resources from foreseen users and hence help bridge the (perceived) gap between research infrastructures and the broader user community. 

Target audience 

The workshop is targeted at (coordinators of) data support professionals who want to get acquainted with tools and resources of the Life Science Research Infrastructures that are available for them and the researchers they support. In addition, they will have the opportunity to provide feedback about the usability of these tools and resources. 


DAY 1 June 13, 2023, 12:00-17.00 CEST

12:00 - 13:00Arrival and lunch for f2f participants
(12:30 Zoom room open for virtual attendants)
13:00 - 13:10Welcome on behalf of Health-RI
Jan-Willem Boiten
13:00 - 13:35Introduction: Reflections about the role of RIs in accelerating research
Niklas Blomberg - director ELIXIR and coordinator EOSC-Life
13:35 - 14:15Theme: Data stewardship Skills
 FAIR Data stewardship training & capacity building
Celia van Gelder - Health-RI/ELIXIR-NL
 Data stewardship Community building
Mijke Jetten - Health-RI/ELIXIR-NL
14:15 - 15:05Theme: FAIR data management & implementation (part 1) 
 Data Stewardship Wizard (DSW)
Espen Åberg - ELIXIR-Norway
 RDMkit – The Research Data Management toolkit for Life Sciences
Munazah Andrabi - ELIXIR-UK
15:05 - 15:30BREAK
15:30 - 17:00Theme: FAIR data management & implementation (part 2) 
 The FAIR Cookbook: a resource for and by FAIR doers in the life sciences
Tooba Abbassi-Daloii - Maastricht University
 FAIRsharing - A curated, informative, and educational resource on data and metadata standards, inter-related to databases and data policies
Allyson Lister - FAIRsharing Content & Community Lead, University of Oxford
 The MDR: A Metadata Repository for Clinical Research
Steve Canham - ECRIN
 Wrap up session

DAY 2 June 14, 2023, 9:30-13:00 CEST

9:00 - 9:30Welcome; coffee and tea
(9:15 Zoom room open for virtual attendants)
9:30 - 10:10Keynote lecture: FAIR patient registries and omics data for modelling disease trajectories
Peter-Bram ‘t Hoen – Radboudumc
10:10 - 11:10Theme: Sensitive data sharing
 Toolbox for sensitive data sharing
Christian Ohmann - ECRIN
 The Netherlands ELSI service desk
Miriam Beusink - Health-RI
Michaela Mayrhofer - BBMRI-ERIC
11:10 - 11:30BREAK
11:30 - 12:50Theme:  Sharing high-quality biosamples and patient engagement
 BBMRI-ERIC Quality Management Services and involvement in EU projects
Maike Tauchert - BBMRI-ERIC & EPND project
 Dutch biobanking standard: Towards harmonized & evidence-based protocols
Hilde Brouwers – Health-RI, Erasmus MC
 Biosample findability - Catalogue/Directory/local UMCG portal
Marije van der Geest – UMCG
 Patient engagement in Translational Research – why, how, and when
Florence Bietrix - EATRIS-ERIC
 Packed lunch / Lunch

Registration or more information can be found Here.