Bridging the gap between researchers and the Life science & Health research infrastructures
Showcasing EATRIS, BBMRI, and ELIXIR tools & resources
- Date: Tuesday 13th - Wednesday 14th June 2023, lunch to lunch.
- Location: Paushuize, Kromme Nieuwegracht 49, Utrecht & online (hybrid meeting)
Introduction
The joint life-sciences research infrastructures (RIs, e.g., EATRIS, BBMRI and ELIXIR) develop and provide services for specific research communities helping to solve bottlenecks and push forward the frontiers of scientific disciplines. In practice we see that the user community is often unaware or insufficiently aware of the services available to them. On the other hand, RIs developing the tools and resources need to stay in touch with a broad range of potential users to get a clear picture of their actual needs.
In the Netherlands, Health-RI aims to be a connector for the national research communities and institutes to get/be optimally aligned with the new developments in the European Research Infrastructures. This workshop is dedicated to showcase several resources developed in Research Infrastructures: context, get feedback on those resources from foreseen users and hence help bridge the (perceived) gap between research infrastructures and the broader user community.
Target audience
The workshop is targeted at (coordinators of) data support professionals who want to get acquainted with tools and resources of the Life Science Research Infrastructures that are available for them and the researchers they support. In addition, they will have the opportunity to provide feedback about the usability of these tools and resources.
Agenda
DAY 1 June 13, 2023, 12:00-17.00 CEST
| 12:00 - 13:00 | Arrival and lunch for f2f participants (12:30 Zoom room open for virtual attendants) |
| 13:00 - 13:10 | Welcome on behalf of Health-RI Jan-Willem Boiten |
| 13:00 - 13:35 | Introduction: Reflections about the role of RIs in accelerating research Niklas Blomberg - director ELIXIR and coordinator EOSC-Life |
| 13:35 - 14:15 | Theme: Data stewardship Skills |
| FAIR Data stewardship training & capacity building Celia van Gelder - Health-RI/ELIXIR-NL | |
| Data stewardship Community building Mijke Jetten - Health-RI/ELIXIR-NL | |
| 14:15 - 15:05 | Theme: FAIR data management & implementation (part 1) |
| Data Stewardship Wizard (DSW) Espen Åberg - ELIXIR-Norway | |
| RDMkit – The Research Data Management toolkit for Life Sciences Munazah Andrabi - ELIXIR-UK | |
| 15:05 - 15:30 | BREAK |
| 15:30 - 17:00 | Theme: FAIR data management & implementation (part 2) |
| The FAIR Cookbook: a resource for and by FAIR doers in the life sciences Tooba Abbassi-Daloii - Maastricht University | |
| FAIRsharing - A curated, informative, and educational resource on data and metadata standards, inter-related to databases and data policies Allyson Lister - FAIRsharing Content & Community Lead, University of Oxford | |
| The MDR: A Metadata Repository for Clinical Research Steve Canham - ECRIN | |
| Wrap up session | |
| 17:00 | DRINKS |
DAY 2 June 14, 2023, 9:30-13:00 CEST
| 9:00 - 9:30 | Welcome; coffee and tea (9:15 Zoom room open for virtual attendants) |
| 9:30 - 10:10 | Keynote lecture: FAIR patient registries and omics data for modelling disease trajectories Peter-Bram ‘t Hoen – Radboudumc |
| 10:10 - 11:10 | Theme: Sensitive data sharing |
| Toolbox for sensitive data sharing Christian Ohmann - ECRIN | |
| The Netherlands ELSI service desk Miriam Beusink - Health-RI | |
| BBMRI ELSI Service Michaela Mayrhofer - BBMRI-ERIC | |
| 11:10 - 11:30 | BREAK |
| 11:30 - 12:50 | Theme: Sharing high-quality biosamples and patient engagement |
| BBMRI-ERIC Quality Management Services and involvement in EU projects Maike Tauchert - BBMRI-ERIC & EPND project | |
| Dutch biobanking standard: Towards harmonized & evidence-based protocols Hilde Brouwers – Health-RI, Erasmus MC | |
| Biosample findability - Catalogue/Directory/local UMCG portal Marije van der Geest – UMCG | |
| Patient engagement in Translational Research – why, how, and when Florence Bietrix - EATRIS-ERIC | |
| 13:00 | Closure |
| Packed lunch / Lunch |
Registration or more information can be found Here.
